It’s words that I remember ~ language matters

I’m writing about language…again! It’s because this year I have had the great honor to speak at a number of conferences, and it’s come up every time. One of the most important talks I’ve ever given was at the Paincloud Convention. It was the most vulnerable I’ve ever been on stage, probably the most vulnerable I’d ever been in public period (including

Acceptance revisited ~ what has acceptance meant to me?

These days I’m feeling like I’m just a person, not a person with chronic pain, which is an interesting perch to view the past eight years from. I’m trying to piece together how I got here. Granted, I’ve been trying to do so for some time! But never from this vantage point. I recognize how much acceptance has been a part

Pain education – educating patients or making sense of pain together?

In my last post I shared some thoughts on pain education and the phrase ‘pain is an output of the brain‘. I compared pain as output to pain as a lived, conscious, complex experience that people feel. From my perspective, describing pain as an output robs the experience of pain’s harsh, all-encompassing, life-changing reality. We are not machines producing outputs.


Relax! Running, pain and my CFT experience

In the last week I’ve gone on 2 runs. This is a big deal for me! I love running. Running has been one of the things I’ve missed most these last 7 years. I’ve given it a go a few times, and was quite successful last summer (read about it here!), but I started experiencing new pain in my left hip

Cognitive Functional Therapy with Peter O’Sullivan

I recently attended the third annual San Diego Pain Summit (I’ve been to all three!) and was fortunate to be the patient demo for Peter O’Sullivan‘s Cognitive Functional Therapy workshop. (for a review of the whole workshop, check out Diane Jacob’s post.) Funny thing was, heading into it I thought I was going to be the wrong kind of patient

DermoNeuroModulating course review

I attended Rey Allen’s course on DermoNeuroModulating (DNM) in Boulder, Colorado last month and have been processing all that I learned and experienced there, with much more processing to do. But while it’s still fresh I want to share some of my initial thoughts and impressions. I’ll start with that I highly recommend the course. It was thought-provoking, engaging, interactive,


Shame, resentment, hurt, and pain

At my first ever Writer’s Camp this summer we were given a writing prompt about shame. Shame is a tough thing to write about. It’s something I’ve wanted to write about for quite a while, but I’ve been ashamed to. It’s hard to be that vulnerable, that bare. It’s hard to let the world see into those deep dark places.

Successful living: redefining living with chronic pain

I would like to make a plea. A plea to stop framing pain as the enemy, a thing to be battled, defeated, beat, eradicated. A thing not to be tolerated, to be vilified and stamped out. Perhaps our emphasis on pain as evil, pain as punishment, pain as suffering is only serving to make pain worse. Perhaps using warlike, military

Labels, narratives, identity, and chronic pain

I have been thinking about the language we use with ourselves lately, particularly our self-talk and our labels. I’ve been thinking a lot about the words chronic, pain, and patient in particular. How does continually using, or hearing, these words reinforce our pain? Does being identified as a ‘chronic pain patient’ become an integral part of our identity that then makes it more difficult to change our


Pain: musing on language, motivation, and meaning

I’ve been away from writing for a while because life is happening all around me and I haven’t made the time, but a recent blog post by Dr. Bronnie Lennox Thompson got me thinking (as they usually do!) on a whole lot of topics. Appropriately, her post was titled “Musings on New Learning” and those musings got me onto plenty

Changing pain: reaching out to patients, healthcare providers, and pain practitioners

I have had a lot of interactions with folks over the past couple of weeks about the changes that need to take place, and that are taking place, in the treatment and management of chronic pain and I’m ecstatic! I’ve heard amazing stories from people who are successfully managing their pain and truly LIVING their lives. I’ve also heard stories

What’s the definition of success when treating chronic pain?

Yesterday one of my pain heroes, Bronnie Lennox Thompson over at Health Skills, posted an article that really resonated with me called ‘Deciding When to Say When: Pain Cure? Or Pain Managed? I left a pretty lengthy reply on her blog post, two of them, actually, and felt like they contained some thoughts I should share with you all as well about