Pain education – educating patients or making sense of pain together?

In my last post I shared some thoughts on pain education and the phrase ‘pain is an output of the brain‘. I compared pain as output to pain as a lived, conscious, complex experience that people feel. From my perspective, describing pain as an output robs the experience of pain’s harsh, all-encompassing, life-changing reality. We are not machines producing outputs.

Where I’m coming from when I talk about pain…

So where the heck am I coming from? Part of why I write this blog is to bridge the gap between the science of pain and the experience of pain and between clinicians’ and patients’ understanding of pain. I’m at an interesting intersection in the pain world. I have lived with pain, so view pain science through that lens. I try


Tell me your story: the power of dialogue

I’ve been thinking about this a lot in the last few weeks. Thinking about it ever since Peter O’Sullivan asked me to tell him my story when I was a patient demo during his Cognitive Functional Therapy workshop at the San Diego Pain Summit. And every time I think about it, I get teary. It touches something deep within me

Relax! Running, pain and my CFT experience

In the last week I’ve gone on 2 runs. This is a big deal for me! I love running. Running has been one of the things I’ve missed most these last 7 years. I’ve given it a go a few times, and was quite successful last summer (read about it here!), but I started experiencing new pain in my left hip

Posture and movement habits – my CFT experience

I’ve had a bit of a revelation. I actually started this post a year ago but after my recent experience as a patient demo for Peter O’Sullivan at the San Diego Pain Summit, I started to actually understand it all a bit better and see postural and movement habits a bit differently. This will be one in a series where I try to


Trying to get better while having to prove we’re in pain

How do we get better if we have to constantly prove we’re in pain? And does that constant need to prove we’re in pain prevent us from getting better? In recent posts I wrote about the shame I felt after developing chronic pain and how I’ve been working through that shame. They were the hardest posts I’ve ever written, my most vulnerable by far. And

Shame, resentment, hurt, and pain

At my first ever Writer’s Camp this summer we were given a writing prompt about shame. Shame is a tough thing to write about. It’s something I’ve wanted to write about for quite a while, but I’ve been ashamed to. It’s hard to be that vulnerable, that bare. It’s hard to let the world see into those deep dark places.

Goals. Whose goals are they, ours or theirs?

I went for a walk today and took pictures, a favorite pastime of mine and one I’m very grateful for. As I was perched on two rocks, squatting to gain a better perspective for a photo, I started thinking about a few things, namely goals and motivation.  For a long time I couldn’t squat, at least not with any comfort.


Successful living: redefining living with chronic pain

I would like to make a plea. A plea to stop framing pain as the enemy, a thing to be battled, defeated, beat, eradicated. A thing not to be tolerated, to be vilified and stamped out. Perhaps our emphasis on pain as evil, pain as punishment, pain as suffering is only serving to make pain worse. Perhaps using warlike, military

A moment to reflect: how changing my environment changed my pain experience

I recently attended a writer’s camp in Big Sur, California, a stretch of rugged coast, and afterward took six days to drive from there to Colorado. I wanted to keep myself immersed in nature to let all that I’d learned percolate. I wanted to reflect, to think without distraction, particularly of the digital sort. I didn’t have cell reception for most

Why do I have pain? Searching for meaning beyond a diagnosis

The question of why people living with pain seek a reason for why they have pain recently came up in a Facebook group I’m in. It’s a good question, one I used to struggle with myself. Not the why of what’s causing my pain (that’s really more ‘how’ question, isn’t it?) but rather why do I have pain at all? The why


Managing thoughts and behaviors when living with chronic pain: lessons from a road trip

A lot has changed for me this past year. I’ve experienced successes I wouldn’t have imagined possible 6 years ago (heck, 3 years ago, or even just a year ago). But this most recent success is a pretty huge one for me. Even bigger than the long hikes, starting to run again, and snowshoeing adventures that have happened in this past year. You see,